Follow up visit with Dr Ahmad showed that the two nodes were gone after the Radio Frequency Ablation and my blood work shows a lower thyroglobulin level.
Tuesday, August 9, 2022
Friday, April 2, 2021
Radio Frequency Ablation Day
(copied from my FB Post that day)
Today was radio frequency ablation day. (Rfa).
As it turns out there have been two little thyroid cancerous nodes hanging out uninvited in my central neck compartment for a little while.
They may or may not have been able to grow and cause issues being close to my trachea and voice box etc. So we had to forcibly remove them. (They wouldn’t leave with just the normal eviction notice)
I have been more interested in getting some closure on my thyroid cancer journey lately and surgery appeared to be the only option.
Until I heard about RFA while wanting a second opinion. Surgery or RFA? Rfa is where they stick a fine needle into the node and give it around 20 watts of power using guidance of ultrasound. (I was envisioning some righteous rock music from the 90s was going to save me, but I don’t think that is how radio frequency ablation works)
Rfa and I were love at first sight because who wants a 4th neck surgery?
So today I was partially sedated and they stuck some needles in my neck and “zapped” those suckers.
Hopefully in 6-12 months they will shrivel up and die.
But for now I feel like someone slipped something in my drink and am kinda out of it.
But I am regaining more consciousness as the drugs affect wears off and hoping tomorrow will be a normal General Conference morning.
Cheers
to hopefully a future without lingering thyroid cancer.
Monday, May 5, 2014
Update on my thyroid cancer
I met with Dr Maturlo last Thursday after doing a blood test to see where my Thyroglobulin levels were. We did some tests last year, but I did not document them on this site. The tests last year were all good and showed that the thyroid cancer was still gone. We decided that doing a blood test once a year would be a good idea going forward and that is what I did last week. The blood test showed good results and no need to do any other tests until next year. Dr Maturlo was increasingly interested in how my cholesterol levels have dropped so much and she asked me about the supplements I was taking etc...
Wednesday, November 28, 2012
Surgery for Christmas
The biggest questions I had were
- Where will the cut be and how long?
- Will the surgery be more like the first or second surgery as far as recovery?
- When could I do it?
He answered these and even drew me a nice picture. If you have ever gone to see Dr Denys there is a good chance he has drawn you a picture. I asked him to draw a line on my neck where the incision will be so that I can show my wife. He just made a small dot which is going to be the top of the incision. It is about an inch below my jaw bone under my ear. This means I will have a vertical cut this time where the previous cut was mostly horizontal and low. Good news is that it is mainly skin and fat tissue that will be cut so there will be very little or any messing with muscle, nerves, etc...Hopefully that means it will heal quickly. (Maybe a post Christmas snowboarding trip is still a possibility)
I edited the drawing with photoshop to show the green area in his drawing is where lymph nodes have been removed already. The yellow area is where he will remove more lymph nodes. The theory is that if we remove just the one lymph node again we may see another in a few months. There could be small cancer cells in the other lymph nodes that are not able to be detected yet. If we remove all of them then we will increase the odds of not having to do this again.
I edited the drawing with photoshop to show the green area in his drawing is where lymph nodes have been removed already. The yellow area is where he will remove more lymph nodes. The theory is that if we remove just the one lymph node again we may see another in a few months. There could be small cancer cells in the other lymph nodes that are not able to be detected yet. If we remove all of them then we will increase the odds of not having to do this again.
I scheduled the surgery for Dec 18th. Which is the day I went into the MTC back in 1996 14 years ago. Man I am getting old.
It could be an outpatient surgery with a drainage tube/bag but there is a chance I would stay a day at the hospital. We will have to wait and see. He said to plan on going home but bring a bag just in case.
Dr Denys said the surgery would last around 1.5 hours and he knew exactly what needed to be removed and what he was going to be doing. There is not going to be much or any exploring or discovery while I am sliced open and under. He said the drain tube would stay in for maybe 3 days and then he could take it out. So hopefully by Christmas I will be feeling mostly recovered and ready to play with the kids.
I had an appointment the day before that I missed because I was expecting a call before coming in just in case I did not need to come in at all.
Well, come to find out I should have gone in. The tests came back with elevated levels of thyroglobulin and the scans showed another cancerous lymph node the size of a small marble. Basically the same thing we found out in March only 8 months prior.
What does this mean? More Surgery.
Dr Maturlo told me to meet with Dr Denys and have the lateral lymph nodes removed. Basically, I need to remove them all and be done with it. I could tell she was somewhat frustrated that there is still cancer in my neck from the Thyroid cancer that was removed 3 years ago. Of course her frustration is matched and more intensified by mine where after I hung up I could not help but wonder "why did we do surgery in March?".
I immediately called Dr Douglas Denys' office and set up an appointment for the following week. Until then I did not have many answers and I had to wait a week. We told a few people, but not many since we didn't know the details yet.
Bad news before an anticipated Thanksgiving but nice that Dr Maturlo called me to give it to me rather than wait for a future appointment that could have delayed things and cost more money.
Testing Testing and more Testing - Am I clean from cancer yet?
Two weeks ago I did what I hoped would be the last of the large tests to see if the cancer was gone or not. It started with a shot in the rear end with Thyrogen. (around $1300 a shot) I then returned on Tuesday for the second shot in the neighboring cheek. (another $1300, dont worry, having met my $5500 deductible this year I am only responsible for 20%) By Tuesday I have spent an ipad3 worth of money on a sore rear in an effort to trick my body into thinking that it is HYPO thyroid. It is critical that I am hypo thyroid for my blood test later in the week so we can see if my thyroglobulin levels are where they were supposed to be. I can either stop taking my synthroid for 2 weeks or get this shot. Looking back on this I am wondering why I did not go two weeks and buy an iPad 3. Since I was in Provo already I did get to run a few errands one of which was buying a $10 bow saw at Sears and cutting a few large branches that fell on my rental property near BYU. Something about cutting some wood into smaller pieces that was therapeutic that morning.On Wed I had a weird unrelated visit to the ER after having unbelievable abdominal pain.
On Thursday afternoon I went to do the blood tests.
On Friday I was able to move my appointment for the CT (Cat) and PT (Pet) Scans up from 8:30am to 7:30am since I had a flight to catch to Phoenix and had to be at the airport in SLC at 12. When I arrived to the Utah Valley Outpatient building (the one near Kneaders) after registering they pricked my finger and managed to squeeze out an enormous amount of blood to test my blood sugar level and test my kidneys. Those tests went well so they put an IV in my arm and gave me some radioactive liquid in a syringe to prep for the tests. Then they had me sit in a dark room and drink a lemonade (they asked if I wanted different drinks and I chose lemonade since I rarely want a soda). I sat in the dark room on a recliner (hospital style) with a blanket (also hospital style) in scrubs for around an hour in and out of conscienceness. Eventually they came to get me to take me to the room with the petscan/catscan machine.
I layed on the thin bed with my arms on my side (held in place with a velcro strap) and the bed moved into place. First were the cat scans where I moved back and forth 3 times and each time the machine would say (breath out, breath in, stop breathing). After the CT Scans the bed moved outside of the large donut so only my feet were inside of it. The PT scan took around 35 mins and every few minutes the bed would move and part of my body closer to my head would be scanned. Eventually it was done and I changed my clothes and headed home for final travel preparations and goodbyes. I did get a paper to show the airport security just in case I set off the radiation detectors, but I did not get to use it as I set nothing off out of ordinary when I went through security.Now I had to wait till next week to see what the blood, CT and PT scans showed.
Tuesday, July 24, 2012
Nothing new to update for now
It has been a few months now and I can almost forget having had two surgeries, 3 crazy low iodine diets, tons of tests and medical expenses. I will have to do more tests later this year but for now I keep taking synthroid and tomorrow I have a physical for Scout Camp. I hope my cholesterol is not high still. I am not sure if that was a result of the Thyroid cancer or not, but it is really strange to have high cholesterol when I eat healthy, exercise a ton (I biked 75 miles last Saturday), and take a very good supplement. At the same time there is some talk of high cholesterol not being the real culprit for heart disease so maybe I am just fine. Either way I'll find out tomorrow.
I have been staying busy with my lovely family, my home security systems utah business, and my natural medicine business with essential oils. Stay tuned for a future update.
I have been staying busy with my lovely family, my home security systems utah business, and my natural medicine business with essential oils. Stay tuned for a future update.
Wednesday, March 21, 2012
Post Second Surgery
Well I got to the hospital around 6:30am yesterday with my wife. We checked in and I got changed into some amazingly comfortable paper clothes. (except the socks were cloth, but they have grip on both sides?) I waited for a little while so Sheena and I played some games on the ipad. They put an IV in me and a blood pressure band on my other arm. They also put the pulsating calf wraps on me. Someone came from Nuclear Medicine to put some radiation into the IV so that Dr Denys could tell where my parathyroid glands are and also check for anything else that should or shouldn't hold onto the radiation.
Dr Denys came in and spoke to us some. He put an X on my neck. (Marks the spot) He got the Geiger counter and tried it out and showed us how it worked. After a few minutes he said he would see me in the surgery and left. A few minutes later they came to get me and I said good bye to Sheena. That was the last thing I remembered was saying goodbye and the bed starting to roll.
I woke up around 10 am wondering if the surgery was over or not. I felt my neck and there was a bandage there and being around 90 minutes since I was last conscious I assume it was done. I could hear other things going on around me but it took around 15 minutes until they came and wheeled me to a room where Sheena was. There was another man in the room with a sheet curtain separating us. It was amazing how alert I was but my body was not ready to really move much. I was really anxious to remove the IV, blood pressure band, and calf pulsing things. (They are supposed to prevent blood clots)
Sheena said that Dr Denys called her and told her that the surgery went very well and that they removed the node and it tested positive for papillary carcinoma. He told her he felt that this should be the last of it and he did not think I needed any more radiation therapy, but I would have to talk to the endocrinologist. What is strange is that this node does not react to the radioactive iodine. The question remains if it was really small and starting to grow 2.5 years ago and it was missed, or if it started growing after the surgery. But either way, it is gone now.
So I was feeling a little too warm and claustrophobic and ready to get stuff off me and get out of the hospital. Within a few minutes I stood up and went to the restroom with my wife helping me. I needed some help because I was so light headed still and ready to fall over at any time. After going to the restroom I returned to the bed in my shared room and Sheena helped me change back into my normal clothes. Once I was back in normal clothes we just laid on the bed for a few more minutes. We left the hospital around 11:30am and headed home.
I should have been pretty hungry considering I was fasting still, but my throat hurt more on the inside than the outside. Probably from the breathing tube or gas tube they had in my throat to keep me under. When I got home all I wanted to do sleep. Since my throat was sore I was drinking tons of water and downing doTERRA Onguard Throat Lozenges. After around a 1-2 hour nap I was ready to get up and eat some lunch.
Sheena made me a grilled cheese and a smoothie. I ate it all pretty quick, including my supplements and some essential oils in capsules. After that I was feeling pretty good so I went up to the office and made some calls for an hour or two. After I was done with the calls I went for a little walk outside with the girls and I felt pretty good.
A little while later my mom and Terry arrived with Cafe Rio and we ate and talked and played with the kids for a couple hours. Finally went to bed around 11:30pm. What a long day. I felt ok other than the sore throat and soreness around my incision, but I wondered if I should have spend more time laying down and resting and not talking.
This surgery was so much easier than the last surgery that I had done around 2.5 years ago. I feel pretty good and am looking forward to getting back to running and biking within a week or two.
I am overwhelmed by the amount of concern and support from my neighbors, friends, and family. This experience seems much lighter with the help and prayers of so many. Thank you so much.
Dr Denys came in and spoke to us some. He put an X on my neck. (Marks the spot) He got the Geiger counter and tried it out and showed us how it worked. After a few minutes he said he would see me in the surgery and left. A few minutes later they came to get me and I said good bye to Sheena. That was the last thing I remembered was saying goodbye and the bed starting to roll.
I woke up around 10 am wondering if the surgery was over or not. I felt my neck and there was a bandage there and being around 90 minutes since I was last conscious I assume it was done. I could hear other things going on around me but it took around 15 minutes until they came and wheeled me to a room where Sheena was. There was another man in the room with a sheet curtain separating us. It was amazing how alert I was but my body was not ready to really move much. I was really anxious to remove the IV, blood pressure band, and calf pulsing things. (They are supposed to prevent blood clots)
Sheena said that Dr Denys called her and told her that the surgery went very well and that they removed the node and it tested positive for papillary carcinoma. He told her he felt that this should be the last of it and he did not think I needed any more radiation therapy, but I would have to talk to the endocrinologist. What is strange is that this node does not react to the radioactive iodine. The question remains if it was really small and starting to grow 2.5 years ago and it was missed, or if it started growing after the surgery. But either way, it is gone now.
So I was feeling a little too warm and claustrophobic and ready to get stuff off me and get out of the hospital. Within a few minutes I stood up and went to the restroom with my wife helping me. I needed some help because I was so light headed still and ready to fall over at any time. After going to the restroom I returned to the bed in my shared room and Sheena helped me change back into my normal clothes. Once I was back in normal clothes we just laid on the bed for a few more minutes. We left the hospital around 11:30am and headed home.
I should have been pretty hungry considering I was fasting still, but my throat hurt more on the inside than the outside. Probably from the breathing tube or gas tube they had in my throat to keep me under. When I got home all I wanted to do sleep. Since my throat was sore I was drinking tons of water and downing doTERRA Onguard Throat Lozenges. After around a 1-2 hour nap I was ready to get up and eat some lunch.
Sheena made me a grilled cheese and a smoothie. I ate it all pretty quick, including my supplements and some essential oils in capsules. After that I was feeling pretty good so I went up to the office and made some calls for an hour or two. After I was done with the calls I went for a little walk outside with the girls and I felt pretty good.
A little while later my mom and Terry arrived with Cafe Rio and we ate and talked and played with the kids for a couple hours. Finally went to bed around 11:30pm. What a long day. I felt ok other than the sore throat and soreness around my incision, but I wondered if I should have spend more time laying down and resting and not talking.
This surgery was so much easier than the last surgery that I had done around 2.5 years ago. I feel pretty good and am looking forward to getting back to running and biking within a week or two.
I am overwhelmed by the amount of concern and support from my neighbors, friends, and family. This experience seems much lighter with the help and prayers of so many. Thank you so much.
Monday, March 19, 2012
Surgery Second time around
I am going into the hospital in American Fork for the second time for surgery on my neck tomorrow morning. I need to get there at 6:30am and I am optimistically predicting I will be home by 11am ready to continue my day. I am hoping the surgery will not bring a long recovery. (last time was not as easy as I thought)
Hopefully they will remove the node in question and I will live the rest of my days staying out of hospitals, with exception of when we have more kids.
I am hoping there will not be any radiation therapy following this second surgery, but one step at a time.
I have another hour and twenty minutes till I need to start my fast.
Hopefully they will remove the node in question and I will live the rest of my days staying out of hospitals, with exception of when we have more kids.
I am hoping there will not be any radiation therapy following this second surgery, but one step at a time.
I have another hour and twenty minutes till I need to start my fast.
Sunday, March 4, 2012
Dr Visit with Dr Denys for Consultation about the rebel node
It took a week to get in to see Dr Denys. Which I felt pretty fortunate about, considering his schedule is pretty booked most of the time. It was a typical visit where I waited for a while (maybe an hour). At least I had my iphone to text people and play games and read, until it had less than 10% of power and I thought I should turn it off so I can call my wife on the way home.
It was weird going to the same room where we were originally given the news that I had thyroid cancer over 2 years ago.
Dr Denys looked over the tests etc...and decided that I should remove the jelly bean size node in my neck. Despite the negative pathology reports, we had a high number for the new thyroglobulin test. We set a date for March 20th to have it removed. He thinks we should be able to do an outpatient surgery, which means I will be able to sleep at home not the hospital. (much lighter on my HSA)
Here we go again for surgery.
It was weird going to the same room where we were originally given the news that I had thyroid cancer over 2 years ago.
Dr Denys looked over the tests etc...and decided that I should remove the jelly bean size node in my neck. Despite the negative pathology reports, we had a high number for the new thyroglobulin test. We set a date for March 20th to have it removed. He thinks we should be able to do an outpatient surgery, which means I will be able to sleep at home not the hospital. (much lighter on my HSA)
Here we go again for surgery.
Biopsy guided with an ultrasound
This was a pretty cool idea. Stick a needle in my neck and watch it on a screen so you know you are not sticking the needle in the wrong spot. Genius right?
The day came for the the biopsy and I found myself waiting for an hour in the waiting room. After an hour they called me back and told me that they are not sure if they want to do it because they are worried that the tissue samples would not be kept frozen since it was a Friday and they did not know if everything was the same on Saturdays for the labs doing the testing. Nothing like waiting an hour to wonder why someone did not do some homework before scheduling me on a Friday and making me wait. This is just how going to the dr is like. Waiting and you cannot ever be concerned with the endless amounts of wasted time due to inefficiency. There has to be a doc somewhere that is efficient and doesn't waste patients time and treats patients better.
Finally, they discovered the tissue samples would be fine if they took them out and they asked me to change into an open robe with my shirt off. They had me lay on a table and cleaned the area with the iodine like sterilizing stuff that is dark orange and makes a mess. The radiologist came in and put a general anesthetic in my neck and then started taking samples. He must have gotten around 8-9 samples since he was in and out around that many times. I did not mind since I could not feel much and I wanted to make sure the tests had enough samples. Soon enough the poking with a needle while looking at a monitor was over. (they should have had a monitor built into the ceiling tile so I could watch what the doc was watching on the screen behind me) They cleaned off the orange stuff and then put an interesting bandage that had a cold compress built into it. But why they did not shave my lower neck (upper chest some) was beyond me. That hurt more than the process itself when a few hours later I had my wife rip that thing off as fast as she could.
It hurt for a few days, but I read and heard that using some of the doTerra essential oils would speed the healing and reduce the bruising, so I tried that. I was pretty happy that it healed quick and did not stop me from most of the physical activity I usually enjoy.
The results. Of course the annoying thing about tests is that you do not get results until a day or two or even three later. Many people start to know you are going in for test beforehand and the moment a test is over friends and family want results. Well so do I, so their instant questioning only worsens the frustration. It is not a friends fault that they are trying to be a good friend and show they care, but being easily annoyed at times it makes me want to shake them up and tell them they obviously have not been through our amazing medical testing system lately. Even if you want to get a blood test for anything simple they usually send it somewhere and you don't get results for a day or two. This blog may be sounding that I am hyper critical, but most of these things are just thoughts and sarcasm, as I usually am not really bothered by most of these things that I want to improve.
So the test was done on Friday. On Monday we got a call from Dr Maturlo and she said that the pathology was negative, but the thyroglobulin test came back extremely high, like 28,000 in some unit. So she wanted me to meet with Dr Denys (the ENT surgeon that removed the thyroid to begin with). So good news, but not that good, considering something is still wrong even thought the pathology doesnt show it.
The day came for the the biopsy and I found myself waiting for an hour in the waiting room. After an hour they called me back and told me that they are not sure if they want to do it because they are worried that the tissue samples would not be kept frozen since it was a Friday and they did not know if everything was the same on Saturdays for the labs doing the testing. Nothing like waiting an hour to wonder why someone did not do some homework before scheduling me on a Friday and making me wait. This is just how going to the dr is like. Waiting and you cannot ever be concerned with the endless amounts of wasted time due to inefficiency. There has to be a doc somewhere that is efficient and doesn't waste patients time and treats patients better.
Finally, they discovered the tissue samples would be fine if they took them out and they asked me to change into an open robe with my shirt off. They had me lay on a table and cleaned the area with the iodine like sterilizing stuff that is dark orange and makes a mess. The radiologist came in and put a general anesthetic in my neck and then started taking samples. He must have gotten around 8-9 samples since he was in and out around that many times. I did not mind since I could not feel much and I wanted to make sure the tests had enough samples. Soon enough the poking with a needle while looking at a monitor was over. (they should have had a monitor built into the ceiling tile so I could watch what the doc was watching on the screen behind me) They cleaned off the orange stuff and then put an interesting bandage that had a cold compress built into it. But why they did not shave my lower neck (upper chest some) was beyond me. That hurt more than the process itself when a few hours later I had my wife rip that thing off as fast as she could.
The results. Of course the annoying thing about tests is that you do not get results until a day or two or even three later. Many people start to know you are going in for test beforehand and the moment a test is over friends and family want results. Well so do I, so their instant questioning only worsens the frustration. It is not a friends fault that they are trying to be a good friend and show they care, but being easily annoyed at times it makes me want to shake them up and tell them they obviously have not been through our amazing medical testing system lately. Even if you want to get a blood test for anything simple they usually send it somewhere and you don't get results for a day or two. This blog may be sounding that I am hyper critical, but most of these things are just thoughts and sarcasm, as I usually am not really bothered by most of these things that I want to improve.
So the test was done on Friday. On Monday we got a call from Dr Maturlo and she said that the pathology was negative, but the thyroglobulin test came back extremely high, like 28,000 in some unit. So she wanted me to meet with Dr Denys (the ENT surgeon that removed the thyroid to begin with). So good news, but not that good, considering something is still wrong even thought the pathology doesnt show it.
Low Iodine Scan - Uptake
I thought doing the scan or uptake was a waste of time after doing it a few times already. Dr Maturlo had me do an ultrasound which I also thought was a waste of time.
The good news was that the scan came back negative, there was no cancer tissue that was responsive to the radioactive iodine (r131). But I did have a higher than normal level of thyroglobulin during my blood test while I was hypothyroid. So when Dr Maturlo called with these two tidbits of news she also asked that I go and get an MRI. My wife encouraged me to go that day so I went and got an MRI. An MRI, must be a form of torture in some countries. Sitting still with a cage on your head reminds me of that movie, the man with the iron mask. When I got there they asked me to change into a set of scrubs. I did bring my Serenity essential oil with me this time around to help me relax and sleep. It helped and the 45-60 min went by fast as I was mostly asleep.
I asked for my own copy on a CD on my way out. I figured since I just paid around $1000 for that torture device, which was actually pretty relaxing this time around, I might as well have something to show for it. When I got home my wife and I looked at the MRI, and of course it all looked crazy and we did not know what we were looking at. As you would guess my wife found many things that made her worried from looking at the MRI.
We got a call the next day from Dr. Maturlo and she wanted to meet with me right away. That could not be good, right? As we guessed they found a mass that was around 8mm x 12mm. I assumed it was like a jelly bean or so. The next step was to either remove it or try and figure out if it is thyroid cancer coming back or not. We decided on me having a biopsy with a guided ultrasound.
The good news was that the scan came back negative, there was no cancer tissue that was responsive to the radioactive iodine (r131). But I did have a higher than normal level of thyroglobulin during my blood test while I was hypothyroid. So when Dr Maturlo called with these two tidbits of news she also asked that I go and get an MRI. My wife encouraged me to go that day so I went and got an MRI. An MRI, must be a form of torture in some countries. Sitting still with a cage on your head reminds me of that movie, the man with the iron mask. When I got there they asked me to change into a set of scrubs. I did bring my Serenity essential oil with me this time around to help me relax and sleep. It helped and the 45-60 min went by fast as I was mostly asleep.
I asked for my own copy on a CD on my way out. I figured since I just paid around $1000 for that torture device, which was actually pretty relaxing this time around, I might as well have something to show for it. When I got home my wife and I looked at the MRI, and of course it all looked crazy and we did not know what we were looking at. As you would guess my wife found many things that made her worried from looking at the MRI.
We got a call the next day from Dr. Maturlo and she wanted to meet with me right away. That could not be good, right? As we guessed they found a mass that was around 8mm x 12mm. I assumed it was like a jelly bean or so. The next step was to either remove it or try and figure out if it is thyroid cancer coming back or not. We decided on me having a biopsy with a guided ultrasound.
Low Iodine Diet the third time around
The low iodine diet was much easier the third time around.
I started to make my own almond milk by soaking one cup of almonds in water for a few hours and then blending them with 4 cups of water. After they were blended I would strain out the gritty stuff using an unused nylon of my wife. I would usually add vanilla and some sugar to make it taste better.
Once I had my own almond milk I could make a protein shake using it as a base. Using protein powder from brown rice (vegan). Which also helped that after watching the movie Forks Over Knives, we started getting plant based protein powder instead of whey or animal based protein powder.
I also already knew I could eat Frosted Mini Wheats cereal. But now having milk was a nice addition.
My wife found unsalted peanut butter and I added iodine free salt to it.
She also made fresh bread a few times. Both wheat and french bread.
The ginger snaps that she made that did not have iodine in them were especially yummy.
I started to make my own almond milk by soaking one cup of almonds in water for a few hours and then blending them with 4 cups of water. After they were blended I would strain out the gritty stuff using an unused nylon of my wife. I would usually add vanilla and some sugar to make it taste better.
Once I had my own almond milk I could make a protein shake using it as a base. Using protein powder from brown rice (vegan). Which also helped that after watching the movie Forks Over Knives, we started getting plant based protein powder instead of whey or animal based protein powder.
I also already knew I could eat Frosted Mini Wheats cereal. But now having milk was a nice addition.
My wife found unsalted peanut butter and I added iodine free salt to it.
She also made fresh bread a few times. Both wheat and french bread.
The ginger snaps that she made that did not have iodine in them were especially yummy.
Wednesday, December 21, 2011
Annual check up 2 years since thyroid was removed
It has been two years since I was diagnosed with thyroid cancer and had surgery. I did a blood test and my endocrinologist (Dr Susan Maturlo) told me that I needed a higher does of Synthroid. So I started taking the 225 a day instead of 200 mcg. She also told me that she wanted me to do an ultrasound again. I need to do the low iodine diet for the third time (its an annual tradition now) and do one more scan to make sure I am clean. ARGH! Not what I would prefer to do, but I guess safer than sorry right?
In the last 6 months I have been introduced to doTERRA essential oils. They are natural oils from plants. They have medicinal properties and are natural remedies to hundreds of ailments (see my blog for that at www.doterraexperiences.blogspot.com ). The Frankincense oil has helped many people with cancer so I decided to start taking around 3-4 drops a day under my tongue. This way I can prevent cancer from starting anywhere else and kill any off that may have started. This way I can ensure my scan at the end of January is clean. For now I will have a fun Christmas and Hanukkah and New Years and save the low iodine diet till Jan.
In the last 6 months I have been introduced to doTERRA essential oils. They are natural oils from plants. They have medicinal properties and are natural remedies to hundreds of ailments (see my blog for that at www.doterraexperiences.blogspot.com ). The Frankincense oil has helped many people with cancer so I decided to start taking around 3-4 drops a day under my tongue. This way I can prevent cancer from starting anywhere else and kill any off that may have started. This way I can ensure my scan at the end of January is clean. For now I will have a fun Christmas and Hanukkah and New Years and save the low iodine diet till Jan.
Thursday, January 13, 2011
Back to the low iodine diet
So it has been over a year since I was treated with the radioactive iodine. It is now time for another scan to make sure that there is no more thyroid tissue or cancer in my body. If there is some I will need to do the radioactive dose again. So I need to stop taking my synthroid and do the low iodine diet for 2 weeks to prepare for it. This second time around we felt a little more prepared and I wanted to document what I ate during this time.
Snacks
Almonds (unsalted)
Dried Mangos
Frosted Mini Wheats
Homemade Wheat Bread
Cornbread
Gingersnaps
Breakfasts
Egg Whites with
Oatmeal
MaltoMeal
Hashbrowns
Toast
Waffles
Pancakes
Dinner
Roasted Tomato, Garlic, Basil, and Oregano Spaghetti Sauce and Pasta
Turkey, Mashed Sweet Potatoes and Potatoes, Gravy, and Corn
Turkey Noodle Soup (Made with broth from Turkey) with Cornbread
Flour tortillas with Chicken, avocado, black beans, and onions. (Yes you have to make your own tortillas and make the black beans from a bag since the canned ones have iodized salt in them)
Steak and roasted veggies and sweet potatoes
Chicken Fruit Salad. Mandarin Oranges, apples, lettuce, candied almonds (dressing with Jam, Oil, Vinegar, and sugar in blender)
Lunch (the hardest part if you dont have leftovers)Leftovers
Sandwiches
Salads
Snacks
Almonds (unsalted)
Dried Mangos
Frosted Mini Wheats
Homemade Wheat Bread
Cornbread
Gingersnaps
Breakfasts
Egg Whites with
Oatmeal
MaltoMeal
Hashbrowns
Toast
Waffles
Pancakes
Dinner
Roasted Tomato, Garlic, Basil, and Oregano Spaghetti Sauce and Pasta
Turkey, Mashed Sweet Potatoes and Potatoes, Gravy, and Corn
Turkey Noodle Soup (Made with broth from Turkey) with Cornbread
Flour tortillas with Chicken, avocado, black beans, and onions. (Yes you have to make your own tortillas and make the black beans from a bag since the canned ones have iodized salt in them)
Steak and roasted veggies and sweet potatoes
Chicken Fruit Salad. Mandarin Oranges, apples, lettuce, candied almonds (dressing with Jam, Oil, Vinegar, and sugar in blender)
Lunch (the hardest part if you dont have leftovers)Leftovers
Sandwiches
Salads
Sunday, December 27, 2009
Radiation Story
Well the hospital finally got the R131, radioactive iodine in stock. There was a shortage of the stuff that delayed things a few weeks. Everyday that I could not have iodine or thyroid medication I thought that I should start another business and either make or import this radioactive iodine. It seemed ridiculous that there would be a shortage.
So I went in the hospital, they gave me a capsule, I swallowed it and drove home. They did of course take 30 mins at least to review all of the risks and the rules for outpatient care. There were a few rules, but the biggest rule was to stay 6 feet away from people at all times for a week. I could get closer to people, or my wife and children, but only for 10-15 min max at a time.
I never did research the effects of this radiation on my family, but I did try to stay 6 feet away as much as possible.
I also had to sleep in a separate bed. So I slept in the basement in our guest room. It was a lonely bunch of nights.
They told me that if I wanted to I could come in after 3 days and they would measure how radioactive I was at 1 meter. I needed to be under .08 and unfortunately after 3 days I was .12 so I had to continue the rules. The good thing was that after 48-72 hours I started taking my Thyroid medication (generic for Synthroid) and started eating whatever I wanted.
One of the first meals I had was take out from Bajio. (a Fresh Mexican place) I always get the Flauta Bajio Salad with Pork. It was so good that despite finding a piece of mud 3/4 into it in my mouth, I still finished it. (I first rinsed my mouth out)
So then they told me to come back after two more days and they would measure me again. This time they measured me at 1m I was a .02. (a good amount under the .08) So I was finally able to cuddle with my cute wife and kids again. Yahoo!
So I went in the hospital, they gave me a capsule, I swallowed it and drove home. They did of course take 30 mins at least to review all of the risks and the rules for outpatient care. There were a few rules, but the biggest rule was to stay 6 feet away from people at all times for a week. I could get closer to people, or my wife and children, but only for 10-15 min max at a time.
I never did research the effects of this radiation on my family, but I did try to stay 6 feet away as much as possible.
I also had to sleep in a separate bed. So I slept in the basement in our guest room. It was a lonely bunch of nights.
They told me that if I wanted to I could come in after 3 days and they would measure how radioactive I was at 1 meter. I needed to be under .08 and unfortunately after 3 days I was .12 so I had to continue the rules. The good thing was that after 48-72 hours I started taking my Thyroid medication (generic for Synthroid) and started eating whatever I wanted.
One of the first meals I had was take out from Bajio. (a Fresh Mexican place) I always get the Flauta Bajio Salad with Pork. It was so good that despite finding a piece of mud 3/4 into it in my mouth, I still finished it. (I first rinsed my mouth out)
So then they told me to come back after two more days and they would measure me again. This time they measured me at 1m I was a .02. (a good amount under the .08) So I was finally able to cuddle with my cute wife and kids again. Yahoo!
Saturday, November 28, 2009
Iodine Free Belgian Waffles
Iodine Free Belgian Waffles by Sheena Menke
3-4 egg whites
2 cups flour
1½ cups water
¼ cup apple sauce
¼ cup vegetable oil
1 tablespoon white sugar
4 teaspoons baking powder
¼ teaspoon iodine free salt
½ teaspoon vanilla
Blend Egg whites in blender (or with a mixer) until fluffy. Add everything else and blend all together.
3-4 egg whites
2 cups flour
1½ cups water
¼ cup apple sauce
¼ cup vegetable oil
1 tablespoon white sugar
4 teaspoons baking powder
¼ teaspoon iodine free salt
½ teaspoon vanilla
Blend Egg whites in blender (or with a mixer) until fluffy. Add everything else and blend all together.
Saturday, November 21, 2009
Low Iodine diet
I am a few weeks into the low iodine diet. As anything it is easier after a few weeks. When I first started this diet it was very tough and frustrating. I should have been more prepared. As I have searched on the internet there has been some help on this subject mostly from this website, but I think my experience may help serve someone that is starting the diet today or soon.
The biggest revelation I have had is that I can eat the cereal Shredded Mini Wheats. This has always been a good cereal. I do not eat it all the ti
me on a normal diet, but I do like it and having it as a snack has made it very helpful. They even have strawberry and blueberry muffin flavored variety. They are packed with fiber so they fill you up in between frustrating "What the heck am I do eat for my next meal" times.
These are some of the things I have also been eating:
-Fresh Homemade Bread - My wife has always wanted to make home made bread and this was
her chance. With a few substitutions we have some really good home made bread that we normally do not have. The only downside here is that it takes a few hours preparation.
Breakfast
- Egg Whites and Iodine Free Pancakes - I have had this most mornings.
- Egg Whites and Oatmeal - When I want a break from pancakes
- Egg Whites and hash browns ( I like ketchup on top)
- Banana
Lunch has been tough. The best is to make large dinners so you have leftovers I think.
Dinners.
- Rice and Ground Turkey with Seasonings (Stuffed Peppers)
- Steak and Sweet Potato with Vegetables
- Chicken Fajitas with corn tortillas
- Spaghetti with ground turkey or breaded chicken (Make or find a spaghetti sauce that does not have iodized salt) In the end the Spaghetti Sauce is so yummy and fresh.
- Meatloaf ( I prefer ground turkey) My wife found Ketchup without Salt
- Turkey Roasted or cooked in a Crock Pot (this helps with lunch the next few days)
Snacks
-Fruit (lots of fresh fruit helps a ton, smoothies too with frozen fruit)
-Unsalted Nuts (Target had unsalted almonds and cashews)
-Popcorn (oil and popcorn kernels in a pot on the stove and then add non-iodized salt)
-Almond Butter unsalted from Costco - pretty dang good
Treats
-No Bake Cookies
- Iodine Free Brownies
Essentials
-Carton of Egg Whites
Things you can still eat
- Jam or Jelly
- Skittles
- Orange Juice and other juices
I wish I knew about doTERRA essential oils and DDR Prime earilier on in my Thyroid Cancer journey. They have helped me feel more comfortable and I feel like they helped with my final negative result post my 3rd surgery. If you want to learn more about it go here.
The biggest revelation I have had is that I can eat the cereal Shredded Mini Wheats. This has always been a good cereal. I do not eat it all the ti
me on a normal diet, but I do like it and having it as a snack has made it very helpful. They even have strawberry and blueberry muffin flavored variety. They are packed with fiber so they fill you up in between frustrating "What the heck am I do eat for my next meal" times.
These are some of the things I have also been eating:
-Fresh Homemade Bread - My wife has always wanted to make home made bread and this was
her chance. With a few substitutions we have some really good home made bread that we normally do not have. The only downside here is that it takes a few hours preparation.Breakfast
- Egg Whites and Iodine Free Pancakes - I have had this most mornings.
- Egg Whites and Oatmeal - When I want a break from pancakes
- Egg Whites and hash browns ( I like ketchup on top)
- Banana
Lunch has been tough. The best is to make large dinners so you have leftovers I think.
Dinners.
- Rice and Ground Turkey with Seasonings (Stuffed Peppers)

- Steak and Sweet Potato with Vegetables
- Chicken Fajitas with corn tortillas
- Spaghetti with ground turkey or breaded chicken (Make or find a spaghetti sauce that does not have iodized salt) In the end the Spaghetti Sauce is so yummy and fresh.
- Meatloaf ( I prefer ground turkey) My wife found Ketchup without Salt
- Turkey Roasted or cooked in a Crock Pot (this helps with lunch the next few days)
Snacks
-Fruit (lots of fresh fruit helps a ton, smoothies too with frozen fruit)
-Unsalted Nuts (Target had unsalted almonds and cashews)
-Popcorn (oil and popcorn kernels in a pot on the stove and then add non-iodized salt)
-Almond Butter unsalted from Costco - pretty dang good
Treats
-No Bake Cookies
- Iodine Free Brownies
Essentials
-Carton of Egg Whites
Things you can still eat
- Jam or Jelly
- Skittles
- Orange Juice and other juices
I wish I knew about doTERRA essential oils and DDR Prime earilier on in my Thyroid Cancer journey. They have helped me feel more comfortable and I feel like they helped with my final negative result post my 3rd surgery. If you want to learn more about it go here.
Tuesday, August 25, 2009
Day of the Surgery
I was not sure what to expect but I really thought that the surgery was going to be no big deal. I got there around 1pm. Got ready in scrubs or gown with an IV in me. I waited for a little while with my wife before going under.
When I came to it was passed 7pm. I felt horrible but the dryness in my throat is what was killing me the most. I was also very hungry since I had to fast.
Sheena was there and I was so happy to have her there with me.
They removed the large mass, the small mass, my thyroid, and around 13 lymph nodes.
It was weird to have a tube for fluids to drain out of my neck and to wear weird socks hooked up to some machine that pumped my legs.
After a day or two I checked out of the hospital and I did not have mobility in my neck for what seemed like weeks.
Now that the surgery was over and I was almost recovered, it was time to figure out when the radiation was going to be. (Radiation is just swallowing a radioactive iodine capsule after going 3 weeks on a low iodine diet)
When I came to it was passed 7pm. I felt horrible but the dryness in my throat is what was killing me the most. I was also very hungry since I had to fast.
Sheena was there and I was so happy to have her there with me.
They removed the large mass, the small mass, my thyroid, and around 13 lymph nodes.
It was weird to have a tube for fluids to drain out of my neck and to wear weird socks hooked up to some machine that pumped my legs.
After a day or two I checked out of the hospital and I did not have mobility in my neck for what seemed like weeks.
Now that the surgery was over and I was almost recovered, it was time to figure out when the radiation was going to be. (Radiation is just swallowing a radioactive iodine capsule after going 3 weeks on a low iodine diet)
Wednesday, June 24, 2009
First Signs
I finished running a Ragnar Relay Race here in UT around the end of June 2009. The day after my wife was giving me a much needed massage ( I know what I nice wife huh?) when she noticed a slight bulge on one side of my neck. She wanted to have it checked out, but I told her not to worry about it. We went on a family trip and I told my wife I would have it checked out when we got back if it was still there.
A week or two later I went to the doctor and after looking at it they ordered an ultrasound. I went and got an ultrasound on my neck. After the ultrasound they were decided that it was not my thyroid and that I should see an Ear Nose Throat Dr to have the bulge looked at and removed.
I set up an appointment with Dr Denys and he looked at my neck and thought it was just some type of growth that just needed to be removed. He asked that I get an MRI so he can be sure before he removes it. I went and got an MRI with iodine contrast.
After the MRI he asked that I come in and told me that there was another mass found on my thyroid that was small. He had me lay back and did a fine needle aspiration (biopsy) on the two masses.
A few days later he called me back into his office to tell me that I had papillary carcinoma. (Aka Thyroid Cancer) We scheduled Aug 25 2009 to have it removed and I was very sad I could not run the St George Marathon I was almost completely trained and ready to run.
A week or two later I went to the doctor and after looking at it they ordered an ultrasound. I went and got an ultrasound on my neck. After the ultrasound they were decided that it was not my thyroid and that I should see an Ear Nose Throat Dr to have the bulge looked at and removed.
I set up an appointment with Dr Denys and he looked at my neck and thought it was just some type of growth that just needed to be removed. He asked that I get an MRI so he can be sure before he removes it. I went and got an MRI with iodine contrast.
After the MRI he asked that I come in and told me that there was another mass found on my thyroid that was small. He had me lay back and did a fine needle aspiration (biopsy) on the two masses.
A few days later he called me back into his office to tell me that I had papillary carcinoma. (Aka Thyroid Cancer) We scheduled Aug 25 2009 to have it removed and I was very sad I could not run the St George Marathon I was almost completely trained and ready to run.
Labels:
early signs,
mri,
papillary carcinoma,
thyroid cancer,
ultrasound
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